Are Patient registries the missing link in rare disease research? Find out more here: https://bit.ly/MENA-PatientRegistries #RareDisease #Research #PatientRegistries #Magazine #Medicine #Treatment #Data #DataScience #Tech https://t.co/Ck3u9QirUq
#RareDisease Patients at the Heart of Medical Research http://nymag.com/scienceofus/2017/07/genetic-testing-mutation-uncertainty.html #BRCA #BreastCancer #genomics #tech #SNRTG #genetics #BigData https://t.co/e2R65WtYT6
A #RareDisease Patient At Forefront of Research https://www.eurekalert.org/pub_releases/2016-10/uops-pwr102716.php #SNRTG #BigData #genetics #genomics #tech… https://twitter.com/i/web/status/791936508357857280
