@YouMeRegistry 3 years ago
#ICYMI check out Jaime Seltzer, Dir. of Scientific and Medical Outreach at #MEAction's post on the power of patient registries. We couldn't have said it better ourselves! https://www.meaction.net/2019/09/05/patient-registry-is-the-key-to-achieving-big-data-for-m-e/ @exceedhergrasp1 #bigdata https://t.co/Gv4mFOdCLo
@Primary_Immune1 6 years ago
Patient-Power in the Age of Modern Medicine http://www.sandiegouniontribune.com/business/biotech/sd-me-precision-medicine-20170902-story.html #genomics #technology #RareDisease #science #BigData #patients #cancer https://t.co/9XeuV79xS4