Publicly acknowledging and thanking participants in medical research should be the norm https://twitter.com/PGCgenetics/status/1150789257503629312 #MedEd #OpenScience #SciComm #BigData #genomics #RareDisease #PatientsIncluded
On #RareDisease Research & '#GeneTherapy 2.0' - 'We Need To Celebrate Advances in Medical Science – Though They May Take Years to Emerge" https://www.theguardian.com/science/2017/dec/17/stunning-gene-therapy-breakthrough-riposte-to-truth-tarnished-times #OpenScience #science #ITRTG #BigData #genomics #biotech #data #biotech #genetics #innovation #SNRTG #technology
Implications of the widespread use of medical records for research, without consent, #bigdata #healthcare #genomics… https://twitter.com/i/web/status/843525027467333632
A #RareDisease Patient At Forefront of Research https://www.eurekalert.org/pub_releases/2016-10/uops-pwr102716.php #SNRTG #BigData #genetics #genomics #tech… https://twitter.com/i/web/status/791936508357857280
