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@RareRevolutionM 3 years ago
Are Patient registries the missing link in rare disease research? Find out more here: https://bit.ly/MENA-PatientRegistries #RareDisease #Research #PatientRegistries #Magazine #Medicine #Treatment #Data #DataScience #Tech https://t.co/Ck3u9QirUq
@Primary_Immune 5 years ago
Not Sure About Compensation, But YES, Ownership of OUR Data Is a Human Right https://www.economist.com/open-future/2019/01/21/we-need-to-own-our-data-as-a-human-right-and-be-compensated-for-it #IoT #ITRTG #BigData #DataScience #SciComm #MedEd #music #technology #data #tech #HumanRights #genomics #RareDisease #AI CC: @erictopol ***Nice Mention of Medical Data :-) https://t.co/A5ZioXQYLK
@Primary_Immune 5 years ago
When Keeping Up with the Latest on Your Medical Condition Too-Regularly Costs a F#&KING Arm and a Leg https://www.jacionline.org/article/S0091-6749(18)31358-7/abstract #IoT #ITRTG #MedEd #SciComm #tech #BigData #genomics #immunology #PrimaryImmunodeficiency #RareDisease On the Need for #OpenAccess & #OpenScience https://t.co/EzqQXvBzAS
@Primary_Immune 5 years ago
Marking a Medical and Scientific Milestone - "Test-Tube" Babies... 40 Years On https://mosaicscience.com/story/growing-worlds-first-test-tube-baby/ #ITRTG #BigData #technology #science #genetics #genomics #babies #SciComm #MedEd #RareDisease #tech #bioethics https://t.co/bXAS7VbvRZ
@Primary_Immune 5 years ago
A Nice Update on a Medical "Moonshot" Project - Mapping EVERY SINGLE Cell of the Human Body https://wellcome.ac.uk/news/how-make-sense-bodys-billions-cells?utm_source=twitter&utm_medium=referral-wellcome&utm_campaign= #MedED #ITRTG #SciComm #genetics #SNRTG #genomics #tech #technology #BigData #DataScience #biology #RareDisease #RareDiseases @humancellatlas https://t.co/JKh3TecHzf
@Primary_Immune 5 years ago
A Nice Update on a Medical "Moonshot" Project - Mapping All 3 BILLION Cells of the Human Body! https://wellcome.ac.uk/news/how-make-sense-bodys-billions-cells?utm_source=twitter&utm_medium=referral-wellcome&utm_campaign= #ITRTG #SciComm #genetics #SNRTG #genomics #tech #technology #BigData #DataScience #biology #RareDisease #RareDiseases @humancellatlas https://t.co/X2q3vn9dZK
@Primary_Immune 6 years ago
A #Smartphone Microscope Could Transform Medical Diagnostics Globally http://www.newsweek.com/3d-printed-smartphone-microscope-could-prevent-disease-developing-countries-812938 #ITRTG #innovation #science #BigData #tech #technology #RareDisease #SNRTG #science #pathology #GlobalHealth #startups #3Dprinting https://t.co/iCTsE1I8hs
@Primary_Immune 6 years ago
Good Ways to Solve Any Problem, Medical (In This Case) or Otherwise: Sharing, Creativity & Openness https://www.nature.com/articles/d41586-017-08966-z #OpenScience #ITRTG #BigData #technology #brain #science #tech #RareDisease #Biology #genomics #genetics @betenoire1 @Nature https://t.co/KHT8DHtL1W
@Primary_Immune 6 years ago
When It Comes to Online #Research Impact, Medicine & Health Sciences Lead the Way https://www.timeshighereducation.com/data-bites/data-bite-what-kind-research-popular-online #SNRTG #BigData #OpenScience #RareDisease #science #technology #SciComm #IoT #ITRTG #DataScience #healthcare #IT #tech https://t.co/mLUtCCHImF
@Primary_Immune 6 years ago
DNA Sequencing: The Present and Future of Medicine https://www.washingtonpost.com/news/theworldpost/wp/2017/12/13/human-genome/?utm_term=.57777a19b721 #ITRTG #OpenScience #science #BigData #tech #technology #genetics #genomics #RareDisease #GlobalHealth #SNRTG #innovation https://t.co/TF6BLhqUYZ
@Primary_Immune 6 years ago
Brave, Pioneering Patients Advance Medicine: Thank YOU @christiansings for Paving the Way for Others! #SNRTG #OpenScience #RareDisease #GeneTherapy #blindness #BigData #DataScience #genomics #science #technology #tech #genetics #ITRTG #INSPIRATION! https://t.co/ZXwvWpAMmF
@Primary_Immune 6 years ago
"Smart Machines" Take Giant Leap Toward Transforming Medicine http://www.thebritishjournal.com/science/robot-becomes-worlds-first-machine-pass-medical-exam-1891-2017/ #robots #IoT #ITRTG #technology #tech #RareDisease #OpenScience #DataScience #SNRTG #AI #brain #science #BigData https://t.co/wQ4LJR3TL9
@Primary_Immune 6 years ago
The Vast Potential for Diagnosing Unusual Medical Cases on #SocialMedia | https://www.npr.org/sections/goatsandsoda/2017/11/13/557548378/is-it-a-good-idea-to-share-patient-info-on-social-media #ITRTG #IoT #DataScience #OpenScience #RareDisease #tech #SocialMedia #science #BigData #cancer https://t.co/NtHCEgxqaT
@Primary_Immune 6 years ago
Innovation '17: Medical, #RareDisease, Much More! https://www.popsci.com/best-of-whats-new-list-2017?con=TrueAnthem&dom=tw&src=SOC&utm_campaign=&utm_content=59e93c8704d3013c63be1477&utm_medium=&utm_source=#page-13 #IoT #BigData #SNRTG #science #gaming #3Dprinting #tech #ITRTG #AI https://t.co/GZ1oBojQ8A
@Primary_Immune 6 years ago
Experimental Medicine for a "Bubble-Baby" http://wqad.com/2017/10/13/your-health-living-outside-a-bubble/ #innovation #StemCell #SCID #BigData #science #RareDisease #tech #ITRTG https://t.co/Cua8f0gufo
@Primary_Immune 6 years ago
Medicine's Future Could Be VERY Hi-#Tech | http://time.com/4967153/artificial-intelligence-machine-learning/ #AI #ArtificialIntelligence #robots #ITRTG #science #RareDisease #BigData https://t.co/oFIVwdPa52
@Primary_Immune 6 years ago
V. Cool Medical #Smartphone Prototype: Infection Dx/Tx http://vancouverisland.ctvnews.ca/uvic-researchers-create-app-enabled-smart-bandage-to-detect-treat-infections-1.3612694 #innovation #RareDisease #science #tech #BigData #ITRTG #apps https://t.co/jexW1blk9x
@Primary_Immune1 6 years ago
#3Dprinting: Saving Lives, Rocking the Medical World https://3dprint.com/184495/conjoined-babies-3d-systems/ #ITRTG #BigData #science #RareDisease #innovation #tech #SNRTG https://t.co/Xkk6EEZGEg
@Primary_Immune1 6 years ago
Medical Mystery Has Disease Detectives on the Case https://www.statnews.com/2017/08/14/rare-disease-neuropathy-deater/ #RareDisease #genomics #science #tech #SNRTG #genetics #BigData https://t.co/tziAuqPs6P
@Primary_Immune1 6 years ago
#RareDisease Patients at the Heart of Medical Research http://nymag.com/scienceofus/2017/07/genetic-testing-mutation-uncertainty.html #BRCA #BreastCancer #genomics #tech #SNRTG #genetics #BigData https://t.co/e2R65WtYT6
@Primary_Immune1 6 years ago
Science, Medicine & #Technology Converge Coolly http://goo.gl/Vka6yN #RareDisease #VR #science #innovation #SNRTG #ITRTG #BigData #tech https://t.co/xfhOfZ5j6H
@Primary_Immune1 6 years ago
In #Genetic Medicine There's Strength in Numbers http://sitn.hms.harvard.edu/flash/2017/strength-numbers-genetic-sequencing-large-populations-shaping-future-medicine/ #tech #BigData #genomics #RareDisease… https://twitter.com/i/web/status/872020632996909056
@Primary_Immune1 7 years ago
Nice to See Life-Saving Medical #Tech So Honored http://www.belfasttelegraph.co.uk/news/northern-ireland/antrim-girl-donates-3d-prints-of-world-first-kidney-op-to-london-science-museum-35577097.html #SNRTG #BigData #RareDisease #science… https://twitter.com/i/web/status/848949630410911747
@Primary_Immune1 7 years ago
Injecting Precision In #Israel-i Medicine https://www.israel21c.org/new-clues-help-doctors-cure-patients-not-diseases/ #SNRTG #BigData #RareDisease #biotech #tech… https://twitter.com/i/web/status/846306428340047872
@Primary_Immune1 7 years ago
10 Years of Rare Disease Day http://www.nature.com/gt/journal/v24/n2/full/gt20177a.html #SNRTG #BigData #RareDisease #science #tech #GeneTherapy… https://twitter.com/i/web/status/835587769426710528
@Primary_Immune1 7 years ago
#GeneTherapy's Much-Deserved "Breakthrough" #Tech Status https://www.technologyreview.com/s/603498/10-breakthrough-technologies-2017-gene-therapy-20/?utm_campaign=add_this&utm_source=twitter&utm_medium=post #SNRTG #BigData #RareDisease… https://twitter.com/i/web/status/835122074653949953
@Primary_Immune1 7 years ago
#GeneTherapy: 'A Desperate Race to Save the Children' http://www.philly.com/philly/news/20170117_The_promise_of_gene_therapy_for_Eli_and_Ella__but_not_Calliope_Joy.html?photo_3 #SNRTG #BigData #RareDisease #tech… https://twitter.com/i/web/status/821388957313355776
@Primary_Immune1 7 years ago
A #RareDisease Patient At Forefront of Research https://www.eurekalert.org/pub_releases/2016-10/uops-pwr102716.php #SNRTG #BigData #genetics #genomics #tech… https://twitter.com/i/web/status/791936508357857280
@Primary_Immune1 7 years ago
New Promise for Gene Therapy http://www.cbsnews.com/videos/new-promise-for-gene-therapy/ #SNRTG #BigData #RareDisease #genomics #science #tech… https://twitter.com/i/web/status/790699634972889088
@Primary_Immune1 7 years ago
The Hope of #GeneTherapy - Exemplified http://news.harvard.edu/gazette/story/2016/09/finally-hope-for-a-young-patient/ #SNRTG #BigData #RareDisease #genomics #science #tech https://t.co/GAZCMsHvV1
@Primary_Immune1 7 years ago
An 'Updated' Lesson in DNA http://www.slu.edu/news/2016/august/Eissenberg-genetics-essay.php #SNRTG #BigData #RareDisease #science #tech #genetics #genomics https://t.co/Vx0uojM9f0