@Primary_Immune 5 years ago
Not Sure About Compensation, But YES, Ownership of OUR Data Is a Human Right https://www.economist.com/open-future/2019/01/21/we-need-to-own-our-data-as-a-human-right-and-be-compensated-for-it #IoT #ITRTG #BigData #DataScience #SciComm #MedEd #music #technology #data #tech #HumanRights #genomics #RareDisease #AI CC: @erictopol ***Nice Mention of Medical Data :-) https://t.co/A5ZioXQYLK
@Primary_Immune 6 years ago
On #RareDisease Research & '#GeneTherapy 2.0' - 'We Need To Celebrate Advances in Medical Science – Though They May Take Years to Emerge" https://www.theguardian.com/science/2017/dec/17/stunning-gene-therapy-breakthrough-riposte-to-truth-tarnished-times #OpenScience #science #ITRTG #BigData #genomics #biotech #data #biotech #genetics #innovation #SNRTG #technology