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@Primary_Immune 3 years ago
. "Med Ed" in Immunology The case for case-reports to enhance knowledge and curiosity in MDs and medical students 🧬especially cases of #RareDisease patients :-) https://www.frontiersin.org/articles/10.3389/fimmu.2020.01756/abstract #iot #itrtg #MedEd #openscience #bigdata #immunology #PrimaryImmunodeficiency #genomics https://t.co/mJnv7iAwxV
@Primary_Immune 3 years ago
Case number 12 of a #PrimaryImmunodeficiency patient infected with #COVID19 enters medical literature https://onlinelibrary.wiley.com/doi/full/10.1002/pbc.28382 #serverless #iot #itrtg #openscience #meded #WomenInStem #bigdata #immunology #SARS_CoV_2 #raredisease https://t.co/XOYN6uJWxn
@Primary_Immune 4 years ago
A tragic medical mystery solved... -the power and transformational potential of the "genomic autopsy" demonstrated _News: https://edition.cnn.com/2020/01/16/health/amish-children-sudden-deaths-mystery-trnd/index.html #iot #bigdata #itrtg #technology #meded #scicomm _Journal: https://jamanetwork.com/journals/jamacardiology/article-abstract/2758306 #cardiology #genomics #RareDisease https://t.co/OC0oYgVNkT
@Primary_Immune 4 years ago
Rare disease relevance and beyond in an insightful year-in-review genomics piece - "Research into genomic medicine implementation is moving forward briskly..." https://www.cell.com/ajhg/fulltext/S0002-9297(19)30427-6 #serverless #iot #SciComm #rstats #MedEd #OpenScience #ITRTG #BigData #genomics #RareDisease https://t.co/BqNp6jd2ki
@Primary_Immune 5 years ago
A Brand New #RareDisease Enters Medical Literature; Genes Never Before Implicated in Human Pathology Decoded https://www.eurekalert.org/pub_releases/2019-02/uob-fpa020519.php #IoT #ITRTG #BigData #SciComm #Meded #DataScience #technology #genomics #RareDisease #EnfermedadesRaras @UniBarcelona https://t.co/yWqJ7lZtTQ
@Primary_Immune 5 years ago
Not Sure About Compensation, But YES, Ownership of OUR Data Is a Human Right https://www.economist.com/open-future/2019/01/21/we-need-to-own-our-data-as-a-human-right-and-be-compensated-for-it #IoT #ITRTG #BigData #DataScience #SciComm #MedEd #music #technology #data #tech #HumanRights #genomics #RareDisease #AI CC: @erictopol ***Nice Mention of Medical Data :-) https://t.co/A5ZioXQYLK
@Primary_Immune 5 years ago
A Brand New Rare #Genetic Disease Enters Medical Literature - A New Primary Immunodeficiency Disorder :-) https://www.mcgill.ca/newsroom/channels/news/another-medical-cold-case-cracked-muhcs-dr-house-292353 #ITRTG #IoT #BigData #DataScience #genomics #SciComm #technology #genetics #MedEd #PrimaryImmunodeficiency #Immunology #RareDisease @mcgillu https://t.co/K03ORKB15v
@Primary_Immune 5 years ago
When Science and Medicine Move Into "Uncharted Territory" https://www.reuters.com/investigates/special-report/genomics-tumor/?utm_source=twitter&utm_medium=Social #IoT #ITRTG #BigData #SciComm #MedEd #technology #RareDisease #ChildhoodCancer #BrainCancer #PrecisionMedicine #genomics https://t.co/DJUvq3ubYH
@Primary_Immune 5 years ago
In 2011, U.S. @DeptVetAffairs Asked G.I.s for Voluntary Donations of 1 Tube of Blood for Genetic Medicine Research. 700K Vets Said "Yes!" http://www.hawaiipublicradio.org/post/veterans-leading-charge-genetic-medicine #IoT #ITRTG #BigData #SciComm #MedEd #technology #USmilitary #genetics #genomics #RareDisease #RareDiseases #science https://t.co/YoeZV1oYqn
@Primary_Immune 5 years ago
A Brand New Rare Genetic Disorder Enters Medical Literature #IoT #ITRTG #BigData #bioinformatics #DataScience #technology #SciComm #MedEd #genetics #genomics #RareDisease @cgonzagaj @ClinicSpecChild Article: https://www.eurekalert.org/pub_releases/2018-11/cfsc-rfm111918.php Journal: https://www.cell.com/cms/10.1016/j.ajhg.2018.09.014/attachment/d5042c06-1a04-428c-a4b1-16bd615b484a/mmc2 https://t.co/IfcBtqJ6Ht
@Primary_Immune 5 years ago
Brain Research to Cancer, Stem Cells to Genetics, And All Points Between - The Rising Stars of Science & Medicine, 2018 https://www.statnews.com/wunderkinds/?utm_content=buffer01951&utm_medium=social&utm_source=twitter&utm_campaign=twitter_organic #IoT #ITRTG #BigData #DataScience #SciComm #MedEd #genetics #genomics #biotech #STEM #StemCells #technology #RareDisease @statnews https://t.co/xMHr4pMAfG
@Primary_Immune 5 years ago
When Keeping Up with the Latest on Your Medical Condition Too-Regularly Costs a F#&KING Arm and a Leg https://www.jacionline.org/article/S0091-6749(18)31358-7/abstract #IoT #ITRTG #MedEd #SciComm #tech #BigData #genomics #immunology #PrimaryImmunodeficiency #RareDisease On the Need for #OpenAccess & #OpenScience https://t.co/EzqQXvBzAS
@Primary_Immune 5 years ago
It's Not Everyday That a Brand New #RareDisease Enters Medical Literature https://elifesciences.org/articles/32451 #SciComm #ITRTG #BigData #DataScience #IoT #innovation #technology #SNRTG #MedEd #brain #genetics #epilepsy #neuroscience #genomics https://t.co/fisuGUtWne
@Primary_Immune 6 years ago
Towards Medical Cures - One Generous Patient Donating Their Medical Data At a Time https://www.theguardian.com/commentisfree/2018/apr/22/medical-research-needs-big-data-tessa-jowell-gets-ball-rolling #ITRTG #MedEd #BigData #science #technology #SNRTG #IT #IoT #philanthropy #DataScience #SciComm #RareDisease #genetics #genomics https://t.co/XwQwOyU1Rq
@Primary_Immune 6 years ago
Medicine Meets #Comics - Great Links to Some Brilliant, Touching & Educational Resources https://hyperallergic.com/430440/inside-comics-collection-worlds-largest-medical-library/ #ITRTG #BigData #art #ArtTherapy #RareDisease #education #IoT #MedEd #cancer #ChildhoodCancer #MentalHealth #ChronicIllness #SNRTG @ElenaGoukassian @hyperallergic https://t.co/CRX6jhrsGB
@Primary_Immune 6 years ago
A Call for Compassionate Medical Science to Merge with Family-Driven #CitizenScience | http://wbur.fm/2Aqtl1S #ITRTG #genomics #IoT #technology #RareDisease #science #BigData #OpenScience #DataScience #biotech #pharma #MedEd #SNRTG #genetics https://t.co/IJT4tNNDNF