@Primary_Immune 3 years ago
The 1⃣1⃣th case of a Primary Immunodeficiency patient with COVID-19 to enter medical literature - good news: recovered + discharged https://www.researchsquare.com/article/rs-28155/v1 #serverless #iot #rstats #meded #openscience #snrtg #bigdata #covid19 #immunology #PrimaryImmunodeficiency #RareDisease https://t.co/dsRCMJDXVI
@Primary_Immune 3 years ago
The 8th #PrimaryImmunodeficiency patient infected with #COVID19 in medical literature - insightful clinical details ...heartening news - recovered + discharged https://www.annallergy.org/article/S1081-1206(20)30314-8/pdf #serverless #iot #bigdata #snrtg #meded #openscience #Covid_19 #immunology #CVID #RareDisease https://t.co/taKZX8uNEh
@Primary_Immune 5 years ago
Towards Medical Cures - One Generous Patient Donating Their Medical Data At a Time https://www.theguardian.com/commentisfree/2018/apr/22/medical-research-needs-big-data-tessa-jowell-gets-ball-rolling #ITRTG #MedEd #BigData #science #technology #SNRTG #IT #IoT #philanthropy #DataScience #SciComm #RareDisease #genetics #genomics https://t.co/XwQwOyU1Rq
@Primary_Immune 6 years ago
A Model for Rare Medical Research: Patient/Researcher Collaboration, #OpenScience, Data-Sharing & Mining, #Genomics and #SocialMedia | https://www.the-scientist.com/?articles.view/articleNo/51148/title/Researchers-Team-Up-with-Patients-to-Build-a-Breast-Cancer-Database/ #ITRTG #IoT #RareDisease #BreastCancer #cancer #SNRTG #BigData #genetics #science @corrie_painter @broadinstitute https://t.co/xZSI10MD3e
@Primary_Immune1 7 years ago
A #RareDisease Patient At Forefront of Research https://www.eurekalert.org/pub_releases/2016-10/uops-pwr102716.php #SNRTG #BigData #genetics #genomics #tech… https://twitter.com/i/web/status/791936508357857280