@NUS_CBmE 2 years ago
Trustworthy Governance for Sharing Health Related Data @TamraLysaght, Angela Ballantyne, Toh Hui Jin, and @SereneAKOng MediCine Issue 40 / November 2021 https://medicine.nus.edu.sg/newsletters/issue40/ethically-speaking/trustworthy-governance-for-sharing-health-related-data/ #Bioethics #BigData #DataSharing #PrecisionMedicine #Singapore @NUSMedicine @Otago
@Floridi 5 years ago
Our book "The Ethics of Medical Data Donation" is now available, Open Access: https://link.springer.com/book/10.1007/978-3-030-04363-6 #datadonation #dataethics #medicaldata #healthdata #BigData #bioethics many thanks to @Jen_BMJ @PhilosL @pnhoward @philosophynws @philosophybites @oiioxford @oxfordethicslab
@Jen_BMJ 5 years ago
Our book "The Ethics of Medical Data Donation" is now available online (OA): https://link.springer.com/book/10.1007/978-3-030-04363-6 @Floridi #datadonation #dataethics #medicaldata #healthdata #BigData #bioethics
@Primary_Immune 5 years ago
Marking a Medical and Scientific Milestone - "Test-Tube" Babies... 40 Years On https://mosaicscience.com/story/growing-worlds-first-test-tube-baby/ #ITRTG #BigData #technology #science #genetics #genomics #babies #SciComm #MedEd #RareDisease #tech #bioethics https://t.co/bXAS7VbvRZ
@Primary_Immune1 7 years ago
Having Cured a #RareDisease In #Cats, #GeneTherapy Readies for Human Trials http://abc3340.com/news/fighting-for-you/a-cure-for-clara-research-on-cats-at-auburn-vet-college-may-hold-the-key #SNRTG #BigData… https://twitter.com/i/web/status/844292890704662530
@Primary_Immune1 7 years ago
#GeneTherapy Brings New Hope to a "Bubble-Baby" http://www.sfchronicle.com/health/article/Amid-advances-in-gene-therapy-bubble-baby-10991046.php #SNRTG #BigData #RareDisease #science… https://twitter.com/i/web/status/841236975092936705
@Primary_Immune1 7 years ago
The Vector That Makes #GeneTherapy Work? Viruses! http://www.click2houston.com/health/viruses-being-used-to-help-cure-disease #SNRTG #BigData #RareDisease #genomics… https://twitter.com/i/web/status/841062173447188481
@Primary_Immune1 7 years ago
10 Years of Rare Disease Day http://www.nature.com/gt/journal/v24/n2/full/gt20177a.html #SNRTG #BigData #RareDisease #science #tech #GeneTherapy… https://twitter.com/i/web/status/835587769426710528
@Primary_Immune1 7 years ago
#GeneTherapy's Much-Deserved "Breakthrough" #Tech Status https://www.technologyreview.com/s/603498/10-breakthrough-technologies-2017-gene-therapy-20/?utm_campaign=add_this&utm_source=twitter&utm_medium=post #SNRTG #BigData #RareDisease… https://twitter.com/i/web/status/835122074653949953
@Primary_Immune1 7 years ago
#GeneTherapy’s Time Has Come; These Pioneers Are Leading the Way http://blogs.plos.org/dnascience/2017/02/23/rare-disease-day-2017-talias-story/ #SNRTG #BigData… https://twitter.com/i/web/status/834798286850650112
@Primary_Immune1 7 years ago
Proliferation of #GeneTherapy for New #RareDisease(s) is Mind-Blowing http://globalnews.ca/news/3255396/calgary-patient-with-rare-condition-first-in-the-world-to-receive-experimental-gene-therapy/ #SNRTG #BigData… https://twitter.com/i/web/status/832504915520020480
@Primary_Immune1 7 years ago
#GeneTherapy Could Save Kids (& Puppies!) w/ Fatal #RareDisease | https://www.eurekalert.org/pub_releases/2017-02/uowh-gtt021517.php #SNRTG #BigData #genomics… https://twitter.com/i/web/status/832172587233005569
@Primary_Immune1 7 years ago
Glimpsing the Future of #Cancer Tx http://www.today.com/health/experimental-gene-therapy-helped-one-woman-fight-cancer-t107772 #SNRTG #BigData #RareDisease #GeneTherapy #science… https://twitter.com/i/web/status/830719777228337152
@Primary_Immune1 7 years ago
#RareDisease Mom Gets #OrphanDrug Status for Her #GeneTherapy | http://www.businesswire.com/news/home/20170202006067/en/Lysogene-Receives-Orphan-Drug-Designation-FDA-LYS-GM101 #SNRTG #BigData #biotech… https://twitter.com/i/web/status/828642779425304578
@Primary_Immune1 7 years ago
#GeneTherapy Saves a "Bubble-Boy" - Great Job @GreatOrmondSt | http://gulfnews.com/news/uae/health/gene-therapy-saves-emirati-infant-s-life-1.1971149 #SNRTG #BigData #RareDisease… https://twitter.com/i/web/status/826496512108683265
@Primary_Immune1 7 years ago
#GeneTherapy Retro In Current @Sciam; 2017: On Way to DNA Cures https://www.scientificamerican.com/article/1967-gene-therapy-might-cure-many-illnesses-1867-the-grandeur-of-public-architecture/ #SNRTG #BigData… https://twitter.com/i/web/status/821669979309436930
@Primary_Immune1 7 years ago
#GeneTherapy: 'A Desperate Race to Save the Children' http://www.philly.com/philly/news/20170117_The_promise_of_gene_therapy_for_Eli_and_Ella__but_not_Calliope_Joy.html?photo_3 #SNRTG #BigData #RareDisease #tech… https://twitter.com/i/web/status/821388957313355776
@Primary_Immune1 7 years ago
2016 - The Year Gene Therapy Came of Age https://www.technologyreview.com/s/603206/everything-you-need-to-know-about-gene-therapys-most-promising-year/ #SNRTG #BigData #RareDisease #GeneTherapy #science… https://twitter.com/i/web/status/814760173457829888
@Primary_Immune1 7 years ago
Pioneering #GeneTherapy - A Dying Girl Now Cancer-Free http://www.telegraph.co.uk/news/2016/12/26/new-gene-therapy-cancer-treatment-wipes-dying-girls-leukaemia/ #SNRTG #BigData #RareDisease… https://twitter.com/i/web/status/813674285265014785
@Primary_Immune1 7 years ago
Disabling #Hemophilia to 'Normal Life' After 1-Dose #GeneTherapy | https://www.eurekalert.org/pub_releases/2016-12/chop-agt120116.php #SNRTG #BigData… https://twitter.com/i/web/status/805757557679722496
@Primary_Immune1 7 years ago
Newborn Screening IDs #SCID Baby, #GeneTherapy Saves Him https://thriving.childrenshospital.org/newborn-screening-gene-therapy-save-baby-from-bubble-boy-disease/ #SNRTG #BigData #RareDisease… https://twitter.com/i/web/status/805074086615465984
@BigDataReport_ 7 years ago
4 Ways #BigData Will Disrupt Animal Testing in Biomedical Research http://bit.ly/2gvLzp9 #Tech #Analytics
@Primary_Immune1 7 years ago
ICYMI: #GeneTherapy's New Hope for the "Butterfly Children" http://med.stanford.edu/news/all-news/2016/11/gene-therapy-for-blistering-skin-disease-appears-to-enhance-healing.html #SNRTG #BigData #RareDisease… https://twitter.com/i/web/status/794453263278100480
@Primary_Immune1 7 years ago
#GeneTherapy Uses Inert #HIV Virus to Delver Its Cargo http://www.cbsnews.com/news/fighting-genetic-disease-with-help-from-hiv-virus/ #SNRTG #BigData #RareDisease… https://twitter.com/i/web/status/791001528370864128
@Primary_Immune1 7 years ago
New Promise for Gene Therapy http://www.cbsnews.com/videos/new-promise-for-gene-therapy/ #SNRTG #BigData #RareDisease #genomics #science #tech… https://twitter.com/i/web/status/790699634972889088
@Primary_Immune1 7 years ago
Fascinating MedTech Prroof-of-Concept: #GeneTherapy In-a-Box http://www.geekwire.com/2016/newly-developed-gene-therapy-box-save-millions-lives/ #SNRTG #BigData #RareDisease… https://twitter.com/i/web/status/789460827078295552
@Primary_Immune1 7 years ago
Fascinating Medical Technology: #GeneTherapy In-a-Box http://www.geekwire.com/2016/newly-developed-gene-therapy-box-save-millions-lives/ #SNRTG #BigData #RareDisease #science… https://twitter.com/i/web/status/789449248785829888
@Primary_Immune1 7 years ago
#GeneTherapy vs An Entire Family of #RareDiseases | http://www.nature.com/nature/journal/v537/n7621_supp/full/537S158a.html?WT.mc_id=TWT_OUTLOOK_LSDS #SNRTG #BigData #RareDisease #genomics… https://twitter.com/i/web/status/784820203284725760
@LauraCrossam 7 years ago
Americans Fear a Future of Designer Babies and Brain Chips #bigdata #science #tech #iot #innovation #datascience http://buff.ly/2cFDhDW
@pete_geek 7 years ago
Americans Fear a Future of Designer Babies and Brain Chips #bigdata #science #tech #iot #innovation #datascience http://buff.ly/2cnx5ma
@Primary_Immune1 7 years ago
Upbeat Look at #RareDisease Cures by Gene-Editing http://news.miami.edu/stories/2016/09/fda-commissioner-sees-a-future-where-gene-editing-will-cure-disease.html #SNRTG #BigData #genomics #science #CRISPR https://t.co/hMOIGrwNb1
@Primary_Immune1 7 years ago
The Hope of #GeneTherapy - Exemplified http://news.harvard.edu/gazette/story/2016/09/finally-hope-for-a-young-patient/ #SNRTG #BigData #RareDisease #genomics #science #tech https://t.co/GAZCMsHvV1
@Primary_Immune1 7 years ago
A Deadly Rare Disease, A Glimmer of Hope http://www.sciencealert.com/activity-of-the-huntington-s-disease-gene-has-been-halted-for-6-months-in-mice #SNRTG #BigData #RareDisease #genomics #GeneTherapy https://t.co/yqjzDTquYD
@Primary_Immune1 7 years ago
Exp #GeneTherapy Reverses Tot's #SCID |http://www.cbc.ca/news/canada/windsor/felix-quiring-immune-disorder-1.3739966 #SNRTG #BigData #PrimaryImmunodeficiency #RareDisease https://t.co/BENd1R5y63
@Primary_Immune1 7 years ago
#GeneTherapy's Hope: Cures for the Incurable http://www.freethinkmedia.com/shows/superhuman/article/the-wonder-medicine-of-the-future-is-about-to-become-the-wonder-medicine-of-the-present/ #SNRTG #BigData #RareDisease #genomics #science https://t.co/nylycd3lEl
@pete_geek 7 years ago
Americans Fear a Future of Designer Babies and Brain Chips #bigdata #science #tech #iot #innovation #datascience http://buff.ly/2azEaQg
@Primary_Immune1 7 years ago
Hannah's #GeneTherapy: #Science Becomes Medicne http://blogs.plos.org/dnascience/2016/07/21/hannah-has-her-gene-therapy-for-gan-when-science-becomes-medicine/ #SNRTG #BigData #RareDisease #genomics @PLOS https://t.co/vGKmAXwdIf
@Primary_Immune1 7 years ago
Hannah's Hope: #GeneTherapy & An Incurable #RareDisease | http://yourcliftonpark.com/2016/07/15/new-hope-for-rexford-girl-who-suffers-from-rare-illness/ #SNRTG #BigData #science @HHF4GAN https://t.co/XXCfJD7W0b
@Primary_Immune1 7 years ago
Pioneering #GeneTherapy Tackles a Deadly #RareDisease | http://www.dispatch.com/content/stories/local/2016/06/28/2-year-old-undergoing-experimental-therapy-defying-the-odds.html #SNRTG #BigData #genomics #science https://t.co/0DNyjkw7Ji
@Primary_Immune1 7 years ago
A #GeneTherapy Is Born and Toasted: @DanaFarber w/ @Rbaehner | http://vector.childrenshospital.org/2016/06/cgd-gene-therapy-trial-a-decades-long-scientific-journey/ #SNRTG #BigData #RareDisease https://t.co/3ot9vuZeUQ
@MedicReS 8 years ago
#Biostatistics #Bioethics #Publication #Policy in the Age of #BigData #DavidResnik #socialmedia #clinical #medical https://www.linkedin.com/pulse/biostatistics-bioethics-publication-policy-age-big-data-kanik-phd
@arzukanik 8 years ago
#Biostatistics, #Bioethics & #Publication #Policy in the Age of #BigData” - #MedicReS #NewYork #theLancet https://www.linkedin.com/pulse/biostatistics-bioethics-publication-policy-age-big-data-kanik-phd